Volunteering Opportunities with DEBRA - The Butterfly Skin Charity

About

DEBRA are the UK’s national charity for people affected by epidermolysis bullosa (EB). They support more than 4,000 members across the UK, including over 2,000 people living with EB. Each year, more than 700 members use their support services. DEBRA are there for people with inherited EB, their families and carers, as well as healthcare professionals and researchers. Alongside their support work, they fund and drive vital medical research to improve lives. They also provide community support services for people living with acquired EB, known as epidermolysis bullosa acquisita (EBA). The charity was established in 1978 by Phyllis Hilton, whose daughter Debra had EB, as the world’s first EB patient support organisation. DEBRA UK went on to establish DEBRA International, which now runs independently to help establish and support a global network of over 50 DEBRA patient support organisations.